SPLASH study dataset: exploring caregiver perspectives of adults with severe and profound and multiple learning disabilities accessing sedentary hydrotherapy

Tbaily, Caroline, Fazakarley, Louise, Collins, Kathryn and Ellis-Hill, Caroline (2022) SPLASH study dataset: exploring caregiver perspectives of adults with severe and profound and multiple learning disabilities accessing sedentary hydrotherapy.

This dataset contains both the caregiver questionnaire data and the transcript data originally collected for SPLASH Study: exploring caregiver perspectives of adults with Severe and Profound and multiple Learning disabilities Accessing Sedentary Hydrotherapy. While the caregiver questionnaires provide contextual data, the transcripts arise from virtual semi-structured interviews, facilitated by a topic guide underpinned by the World Health Organization's ICF framework (2001) which covered biopsychosocial topics including: health, function, welfare, connections, support and night-time. Access to hydrotherapy was also a persistent topic and as these interviews took place during the Covid-19 pandemic they also feature caregiver perspectives relating to how the pandemic impacted on their care-receiver's access to hydrotherapy and any subsequent perceived impacts. A convenience sample of 23 self-selected volunteer caregivers was recruited through public advertising and a charity gatekeeper. Twenty-three caregivers participated in the study: five family caregivers, nine health-professionals, eight paid caregivers and one volunteer caregiver.