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SPLASHstudy_transcripts.zip

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Classification Sheet - Caregiver Questionnaire.xlsx

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SPLASHstudy_caregiver questionnaires.zip

full_archive archive 5935 disk0/00/00/02/46 2022-07-29 08:25:39 2022-07-29 08:26:20 2022-07-29 08:25:39 data_collection show Tbaily Caroline carriemclarke@googlemail.com Fazakarley Louise lfazakarley@bournemouth.ac.uk Collins Kathryn kcollins@bournemouth.ac.uk Ellis-Hill Caroline cehill@bournemouth.ac.uk Diverse Abilities Dorset HealthCare University NHS Foundation Trust Qualitative, Hydrotherapy, Learning Disabilities, Aquatic Therapy, Intellectual Disability, Caregiver, Questionnaire, Interview, Interpretivist, Barriers, Access, Covid-19, A copy of the SPLASH Study topic guide is available upon request. This dataset contains both the caregiver questionnaire data and the transcript data originally collected for SPLASH Study: exploring caregiver perspectives of adults with Severe and Profound and multiple Learning disabilities Accessing Sedentary Hydrotherapy. While the caregiver questionnaires provide contextual data, the transcripts arise from virtual semi-structured interviews, facilitated by a topic guide underpinned by the World Health Organization's ICF framework (2001) which covered biopsychosocial topics including: health, function, welfare, connections, support and night-time. Access to hydrotherapy was also a persistent topic and as these interviews took place during the Covid-19 pandemic they also feature caregiver perspectives relating to how the pandemic impacted on their care-receiver's access to hydrotherapy and any subsequent perceived impacts. A convenience sample of 23 self-selected volunteer caregivers was recruited through public advertising and a charity gatekeeper. Twenty-three caregivers participated in the study: five family caregivers, nine health-professionals, eight paid caregivers and one volunteer caregiver. 2022-07-26 completed https://eprints.bournemouth.ac.uk/37282/ 10.18746/bmth.data.00000246 Text Tbaily, Caroline bordar@bournemouth.ac.uk The term Learning Disability (LD) defines a significant impairment in cognition and social functioning, present from birth/early-childhood with a lifelong enduring impact. Severe LD (SLD) and Profound and Multiple LD (PMLD) diagnoses are made when intelligence quotient falls below 35 and 20 respectively. Physical disability in LD is largely neurological as brain development is interrupted/affected. While the effectiveness of hydrotherapy (use of water for therapy/rehabilitation) is proven in many neurological conditions, evidence regarding adults with SLD/PMLD is lacking. Previous research in other neurological populations, has centred on the biomedical-model of disability, highlighting a need for exploratory and biopsychosocial research (combining biomedical with psychosocial factors). In this qualitative study, caregivers of adults with SLD/PMLD were recruited through public advertising and participated in virtual semi-structured interviews and an online-questionnaire. The biopsychosocial International Classification of Functioning, Disability and Health framework underpinned the study methodology, informing the main interview topics and questionnaire. Topics included: health, function, welfare, connections and support. Twenty-three caregivers participated in the study: five family, nine health-professional, eight paid, one volunteer. thesis https://eprints.bournemouth.ac.uk/37282/ pub Bournemouth University Other than removing non-anonymised data and adding suitable anonymised replacement in square brackets this data has not been adjusted in any other way. Exploring caregiver perspectives of adults with Severe and Profound and multiple Learning Disabilities Accessing Sedentary Hydrotherapy (SPLASH Study) SPLASH Study is underpinned by the paradigm of interpretivism. Using this paradigmatic underpinning enabled the researcher to identify a purely qualitative methodology, using semi-structured interviews to explore caregiver perceptions. The subsequent addition of qualitative descriptive/contextual questionnaire data, was used to strengthen credibility and provide greater contextual understanding of study findings without distracting from the study’s interpretivist underpinning. This study’s interview topics and subsequent guide were developed from the International Classification of Functioning, Disability and Health (ICF; WHO 2001), following an iterative process of public engagement and response to their feedback. The researcher grouped similar ICF categories together in order to identify the main overarching themes which were then discussed with parent caregivers. This resulted in a list of six topics: health, function, welfare, connections, support and night-time. It is important to understand that although specific question examples are given within the topic guide, the iterative nature of the semi-structured interviews allowed for the flow of the interview to be led by each participant, whilst also allowing for development of new questions as participants raised specific topics which had not been pre-empted by the researcher; these questions were then included in subsequent interviews. Examples of these unexpected topics include social inclusion/exclusion, emotions, and nutrition. The contextual questionnaire, also underpinned by the ICF (WHO 2001), asked participants about their caring role, the level of involvement they have in the care-receiver’s life, their biopsychosocial needs (e.g. diagnoses, communication support needs and level of care), and the type of hydrotherapy they receive. A convenience sample of self-selected volunteer caregivers was recruited through public advertising (posters/leaflets/social media) and via a Diverse Abilities (charity) gatekeeper. Participant interviews were booked on a first come first served basis; no preference was given to any particular caregiver type. There was no pre-determined sample size for this exploratory study, as recruitment continued until data saturation was reached. It was agreed that the researcher would determine data saturation when no new major themes developed from two consecutive interviews, in each of the three caregiver types (paid carers, informal caregivers and health/social care professionals). Interviews were analysed sequentially to enable saturation to be identified. Twenty-three caregivers participated in the study: five family caregivers, nine health-professionals, eight paid caregivers and one volunteer caregiver. In response to the Covid-19 pandemic, the methods were adapted to enable online/virtual data collection in the form of an electronic caregiver questionnaire and virtual semi-structured interviews using videoconferencing. The electronic questionnaire took participants no longer than 10mins to complete, and they were given the choice as to which videoconferencing platform they preferred to use. Most interviews lasted around 40 minutes. United Kingdom 2021-01-15 2021-04-30 2021-01-15 2021-04-30