Anonymised Interview Transcripts from the Study: Care Experiences in Decompensated Advanced Liver Disease. Perspectives of People with Lived Experience, Carers and Professionals

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Beresford, Catherine Jenny (2026) Anonymised Interview Transcripts from the Study: Care Experiences in Decompensated Advanced Liver Disease. Perspectives of People with Lived Experience, Carers and Professionals.

Anonymised interview transcripts from a doctoral study exploring experiences of care in advanced liver disease. Participants include persons with liver disease (PWLD), carers, and healthcare professionals (HCPs). All transcripts have been anonymised, with pseudonyms used for participants.

Dataset Details

Alternative Title:	Experiences of care in advanced liver disease - anonymised interview transcripts
Research / Data Type:	Text
Creators:	Creators Email Beresford, Catherine Jenny cberesford@bournemouth.ac.uk
Groups:	Faculty of Health & Social Sciences (Until 31/07/2025)
Collection period:	From To 3 November 2023 24 September 2024
Date:	2026
Date type:	Publication
Geographic coverage:	United Kingdom
Data collection method:	Semi-structured interviews with individuals living with advanced liver disease, carers and healthcare professionals. The research was underpinned by a Constructivist Grounded Theory qualitative methodology.
Statement on legal, ethical and access issues:	Before recruitment, ethical approval to undertake the study was obtained from the Proportionate Review Sub-committee of the West of Scotland Research Ethics Committee (REC) 4 (IRAS project ID: 331914, REC reference: 23/WS/0150). Approval was also received from Bournemouth University (Ethics ID: 52129). To protect participants’ identities, all transcripts have been fully anonymised. Pseudonyms were used for participants (PWLD, carers, and healthcare professionals), and any potentially identifying information (names, locations, or specific events) has been removed. No legal or ethical issues remain that prevent sharing the data for research purposes, and no access restrictions are required beyond the repository’s standard non-commercial licence (CC BY-NC 4.0).
Funder name(s):	Bournemouth University, Lewis-Manning Hospice Care
Keywords:	Advanced liver disease, decompensated liver disease, persons with liver disease (PWLD), carers, healthcare professionals (HCPs), qualitative interviews, constructivist grounded theory, experiences of care, self-management, empowerment, anonymised transcripts
Status:	Published
Publisher:	Bournemouth University
Copyright holders:	Catherine Beresford
Contact email address:	bordar@bournemouth.ac.uk

Record Details

DOI:	10.18746/bmth.data.00000519
Depositing User:	Catherine Beresford
Year Deposited:	27 Jan 2026 16:22
Revision:	16
Last Modified:	27 Jan 2026 16:22

Available Files

Data

Anonymised Interview ... cripts-ForBORDaR.zip

Related Resources

Care experience ... d professionals

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